Today we headed to our clinic for what they call "Pump 101". It was an hour long class that gave the extreme basics of pumping to a conference room full of parents. They also explained the process we must go through to obtain the pump. I'm still trying to formulate all my thoughts, but on the outset I'd say I'm a little disappointed with the class. I think the information they presented could be done in coordination with a normal endo visit and in a 1/4 of the time.
We were basically told that we have to research each of the pumps ourselves to determine which one would work best for us. The clinic itself deals extensively with Medtronic, so if we decide another pump is more compatible with J.J. then we'll have little support from the clinic. Not that we wouldn't have any....just not as much. So now the burden again is on me to research, research, research.
O.K......done with the negative!!!
The positive side of of the trip is that J.J. sat in on the meeting. He brought a backpack full of cars, and I really didn't think he was listening.....but he was!!! I had talked about the pump to him before this class and his reaction has always been that of fear, and "No way!".
After the speaker was done we had a chance to look at the various pumps. I grabbed a Medtronic pump that had a crayon skin on it, and brought it to J.J. Right away he thought it was cool, and said he would do it. He said he'd wear it on his belt and wanted to take one home with us. He didn't understand that it will take quite a while to actually get his.
One of the requirements the clinic has is the child must want the pump before they'll prescribe one. So to have him so readily accept it was a huge relief. We showed him what would attach to him and let him hold it and push the buttons. He then said... "I'll be able to do this all by myself". Ummmmm.....no!!!
Jason asked about insurances accepting the pump, and she commented that they are seeing more and more insurances denying the pump for someone that's been diagnosed less than 6 months. So we may have to wait after all. That'll be fine, I guess.....I'll need time to research!!
The Elusive 300 Test Strips
O.K......how long has it been since he was diagnosed? Three months this weekend. And.....how many times have we been able walk into the pharmacy and have them give us the prescribed 300 test strips??? ZERO!!!!!
Last month since we were given samples at our endo's office we only had to pick up 200. So we drive up today and the pharmacist says that it's been too soon since our last refill. My husband tells her that doesn't make sense, and asks how many the computer says are prescribed. She said "300", but she said that the prescription reads that we test 4-6x's a day. She then asks how many times do we test, and we say 8-12 times. She said that because the original prescription was for 4-6 she can't bill it properly, so the endo has to give them another prescription. I didn't get it at the time......to me 300 test strips is 300 test strips, and it shouldn't matter to them how many times a day we actually check.
My husband explained it this way......"The sun, the moon, and the stars all have to line up before we can get these strips." I feel that way!!! So tomorrow I'll have to call, fax, e-mail.....whatever it takes to get our N.E. to get a prescription sent to our pharmacist. Maybe, just maybe we'll get those 300 test strips!! Maybe.....