So today was the big A1C day. The diabetes report card. I never really look forward to hearing the results, but am always curious. I was somewhat shocked by the results this time. Having been on MDI for two of the last three months, then the last month on the pump I figured it would be higher. I mean we've seen some pretty bad numbers the past month. Scary numbers. But he ended up at a 7.1% this time.....a .4% decrease. Now I wonder....Could he have been in the 6's if we continued on MDI??? I guess we'll never know.
I want to say that I absolutely love this endo. She is the only reason I continue to stay at this clinic. She treats me as a team player, not a subordinate. She listens and she doesn't talk down to me. She knows I'm the one that has to take care of J.J. 24/7/365 and doesn't get wrapped up in a numbers game. I really like her. That's saying a lot for me....I really don't like many doctors.
Right away she could tell that the "bolus wizard" we were using on the pump was not benefiting us. By using the older model pump we were having to override the "suggested dose" almost all the time. She told me to not use it because it sounds like I can do a better job doing the math on my own than relying on the pump to "suggeest" a dose. I don't know why, but that was totally liberating. The CDE made it sound like J.J.would have aweful numbers and we would get better results using the bolus wizard. I guess most people do......I'm not most people.
So I'm turning off the bolus wizard!!! YAY!! When we get a newer pump we may try the "wizard", but for now we'll stick with a using a good 'ol calculator and pad of paper.
Right away she noticed that we do great in the morning and early afternoon, but after that the numbers are whacky. She suggested not working with the basals anymore because we are really at a high percentage for his age. She said we need to tweak the correction and food doses. So we'll go for that. I think if I can get MDI back in my head, but use the pump for dosing, I'll be set.
As far as our high nighttime numbers she says they see it a lot in kids J.J.'s age. The problem is the growth hormone factor......which by the way he grew a little and gained a little......and the fact that his stomach takes a bit longer to process food. There's so much going on in that little body we can't begin to predict. What she suggested is being more aggressive with our first correction dose.....basically push the envelope.....and ditch the bolus wizard. She said putting him to bed at 150 and seeing him wake up at 150 right now is not feasible.......and here I was trying to obtain that. He is still in his honeymoon phase.....so we don't know what his body is kicking out for insulin. She said until his pancreas is fully inactive we will have to deal with the instability.....but we should be thankful he still has some function and we shouldn't rush the process.
So other than the long drive and full day it was a good appointment. I just wish I could work with her all the time....ditch the CDE's!!! Just kidding....there are good CDE's out there!!!