I often get asked if we still get up in the night with J.J. When I answer "yes", then the inevitable next question is "When will that stop?". I smile and curtly say "Never!". I think then people get a little glimpse that this disease is 24/7/365. Diabetes doesn't go to sleep guys!!
The first question I'll tackle in this post is....Why? ---Why do we get up in the night? We have to get up in the night to check J.J.'s blood to see how he is trending. We want to make sure he's not going too low.....which can kill him......or staying too high for a really long time....which over time can kill him or cause some serious damage!! Dosing insulin is not an exact science so every dose we give him can in reality throw us a curve ball. We kind of know what he "should" do with the amount of insulin we give him, but we still very often scratch our heads and say "Where did that number come from?"
Most often we check when there has been a dose adjustment.....especially with our long acting insulin, Lantus. But even the short acting insulin (or hard exercise) can affect his blood in the night. It's so hard to tell what he is going to do....so we have a habit of checking at least once in the night, if not up to 3 times depending on the "trend".
So what goes on in a typical night? Well, ideally you should be talking to my husband. He has devoted himself to the night watch, which I am so thankful. I am the night owl, so if I can I will take the midnight or 1 am check, depending on how late I'm up. If J.J. seems to be at a fairly good number for sleeping through the night, I'll let hubby sleep and set his alarm for his normal wake up time. If however, and this is most nights, the number is iffy.....it's really in a good range but a bit low to safely let him sleep through the whole night, I'll set hubby's alarm for 2-3 am. Sometimes the checks reveal high numbers, and then we have to dose insulin. If this happens, then we must wake up in 3 hours for another check.
GREAT!! A hand exposed for poking!!:-)
How does J.J. handle the pokes in the night? The finger pokes usually don't even wake him up anymore. When we first started doing it, he woke up every time. But now he sleeps through them. When we have to give him juice or milk for a low he barely wakes up. We learned to use a sippy cup and tip his head back like a baby because he just kind of sleeps through it. The shots are the hardest to give in the night......he really reacts to these....and we really want him to wake up so he doesn't jerk, but it's hard.....so most often he gets a rude awakening!!
The night I took these pictures, J.J. had tucked his diabetes bear in next to him!! They looked so cute laying next to one another.